I had another “super poof” inflammatory gain this week brought on by still getting used to the new meds, the heat, weather changes from Hurricane Fred and eating erratically this week – often with only meal late late in the evening. This is so frustrating.
I looked back and this trend has been going on since I got sick in February. Look at these flares and gains. I think, whatever I got sick with in February (for almost 9 weeks), truly screwed up something with my Mast Cell and it has just not settled down.
So it’s time to try a pretty aggressive change of plans. Trying little things, small elimination trials, new meds – none of it is working so that doesn’t leave much wiggle room.
Between a super high BP, trouble breathing or doing any kind of normal life activities and my doctor being concerned that I am actively in stroke risk territory… I am going to change the only things I can control which are my food and immediate environment.
I have spent days trying to balance things around my various conditions which often directly contradict each other…it is mind boggling…
So in the end, I went back to my Swiss and German Mast Cell disorder information and I think this is what I’m going to try…
FOOD CONTROL CHANGES
Tracking – Calories only – it is just too hard to stay within a specific program guideline given all the restrictions this will entail… I will be switching to Calorie Command to still be accountable.
4 salad plate meals (no regular big plates, no OMAD [one meal a day] ) – smaller meals to reduce the amount of histamine triggers consumed at one time and limit reactivity during the reintroduction trial phases.
WEEK 1 – Potato/Rice Reset – only potatoes (all types), rice (all types), water and pink or sea salt allowed. Provides super bland food to reset gut and inflammation markers. Boring but recommended…
WEEK 2 – Reintroduction Phase 1 – reintroduce up to 2 foods/meal that are  on the list. Whole foods only (minimally processed with no additives, preservatives, fillers) Score reactivity and adjust scores on chart as needed.
WEEK 3 – Reintroduction Phase 2 – continue  food reintroduction + add up to 1 additional  level food/meal.
WEEK 4+5 – Reintroduction Phase 3 – continue  and  level foods reintroduction + add up to 1 additional  level food/day (per day, not per meal).
WEEK 6+7 – Reintroduction Phase 4 – continue  food reintroduction + add up to 1 additional  level food/meal.
WEEK 8 – Trial Introduction Phase – Introduce 1 food marked  in 3 separate meals over 2 days to test individual reactivity. Score and chart accordingly.
WEEK 9 – 3 days Potato Rice Reset followed by 4 days of Phase 3
WEEK 10, 11+12 – Trial Introduction Phase – Introduce 1 food marked  in 3 separate meals over 2 days to test individual reactivity. Score and chart accordingly.
ENVIRONMENTAL CONTROL CHANGES
6 weeks – extremely limited outdoor exposure / contact – basically shelter in place guidelines – avoid going out when possible, avoid exposure to heat and environmental pollutants – reduce Cooking for Sandy to 1 visit a week (still 3 meals just all taken on one day), get Tracy to help with grocery delivery. Reassess in 6 wks.
I can’t control the weather but I can control my exposure to it, getting overheated (which I did several times this week), my exposure to reactants when I go out into public – perfumes, cleaning products, car exhausts etc…
Extreme? Maybe but I have to do something… And this is the rabbit hole plan for now… To Wonderland and Beyond!
If you aren’t familiar with my situation, basically I live with several autoimmune issues… an “inflammatory overstimulation response” brought on by my basic blood cells thinking they are Spartan Warriors and attacking everything in sight.
[Mast Cell Activation Syndrome or MCAS is my main issue but also fun things like Fibromyalgia, POTS, Histamine Intolerance, Insulin Resistance and on and on… ]
My weight fluctuations are not water weight, not sodium retention and the gains do not go away until the cells calm down and the actual muscle inflammation decreases. When a flare happens, everything swells – my eyes, my hands/feet, my actual muscle tissue and organs … I can, and do, put on up to 20lbs in a bad flare and this can take 3-4 weeks to lose again.
Foods, chemicals, weather changes, environmental elements… literally, sometimes just existing, fires them up. Some things I can control and otherwise it is a #justkeepswimming kinda life.
📚 RESOURCES 📚
MAST CELL ACTIVATION SYNDROME
FOOD LIST I WILL BE USING
Postural Orthostatic Tachycardia Syndrome
MY TOP 3 WORST INFLAMMATION TRIGGERS
These are not the same for everyone and in 90% of people they don’t trigger a reaction – but if you are constantly dealing with being bloated, headaches, muscle or joint pain or digestive distress – they may be worth considering as potential inflammation triggers.
WHY “NATURAL FLAVORS” ARE A NO NO FOR ME
CARRAGEENAN (Another big no no)